Network News

Stay informed with the latest updates, stories, and breakthroughs from across the NF community. Read about research advances, community events, advocacy wins, and the people driving change.

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Stories from the NF Community

Explore our latest news, feature stories, and updates covering research breakthroughs, community spotlights, advocacy victories, and more.

October 2024

Spotlight on SketchNF Superhero: Maggie!

Meet Maggie, a young artist using her creative talents to raise funds and awareness for NF research. Through SketchNF, she's turning her passion for art into real impact for the community.

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September 2024

One Sketch at a Time: SketchNF Returns This Summer

The beloved SketchNF campaign is back, bringing together artists from around the world to create portraits and raise critical funds for neurofibromatosis research — one sketch at a time.

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August 2024

NF Center Launches New Therapy Program This Summer

A leading NF specialty center has unveiled an innovative therapy program designed to address the physical and emotional needs of children and adults living with neurofibromatosis.

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July 2024

NF Awareness Month Celebrated Community, Connection, and Hope

May's NF Awareness Month brought together thousands of advocates, families, and supporters across the country for walks, fundraisers, educational events, and powerful stories of resilience.

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June 2024

New Research Grant Awarded for NF2 Gene Therapy Study

A groundbreaking gene therapy study targeting NF2 has received major funding, offering new hope for patients with NF2-related tumors. Researchers aim to begin clinical trials within two years.

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May 2024

NF Network Welcomes New Board Members for 2024

The NF Network is proud to welcome three new members to its Board of Directors, bringing expertise in clinical care, rare disease advocacy, and nonprofit leadership to guide our mission forward.

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