Neurofibromatosis Network

Building Community.
Pursuing a Cure.

The NF Network works tirelessly to serve and build the NF community as we pursue treatments and a cure for neurofibromatosis.

2.5M+
People worldwide with NF
30+
Years of advocacy
50+
Member organizations
$200M+
Federal research funding secured
NF Help Center

Find Support & Information

Whether you're newly diagnosed or a long-time advocate, we're here to help you navigate life with NF.

Find a Doctor

Locate NF specialists and clinical care centers near you with our comprehensive directory.

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What is NF?

Learn about the three types of neurofibromatosis, symptoms, diagnosis, and treatment options.

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Find an NF Group

Connect with local NF support groups and member organizations in your community.

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Our Impact

What We Do

The NF Network works on multiple fronts to improve the lives of those affected by neurofibromatosis.

Research Funding

We advocate for federal research dollars and connect researchers with the NF community to accelerate scientific discovery.

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Advocacy

Our advocacy program fights for increased NIH and CDMRP funding, better clinical care, and policies that support the NF community.

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Community Building

We unite over 50 member organizations, run NF camps, support groups, and create spaces for connection and shared experience.

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Education

From webinars to printed materials, we provide reliable, up-to-date information for patients, families, and healthcare providers.

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Events & Fundraising

Join NF Strong walks, Hope Concerts, and community fundraisers that bring people together while raising critical funds.

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Patient Support

Our NF Heartline connects newly diagnosed patients and families with mentors who understand the journey firsthand.

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Events

Upcoming Events

Join us at an upcoming event to connect, learn, and make a difference.

Jul12

Stronger Together: Navigating NF as a Dad

Virtual — Online

Jun21

NF Strong Summer Concert

Woodstock, GA

Jun28

NF California's Huntington Beach Day

Bolsa Chica State Beach, CA

Jul5

NF Summer Camp at Brainy Ridge

St. George, VA

News

Latest Updates

Stay informed about NF research breakthroughs, community stories, and advocacy wins.

Spotlight on SketchNF Superhero: Maggie!

Meet Maggie, a young artist using her talent to raise awareness and funds for NF research.

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One Sketch at a Time: SketchNF Returns This Summer

The annual SketchNF campaign is back — join artists worldwide in sketching for a cure.

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NF Center Launches New Therapy Program

A new multidisciplinary therapy program opens this summer for NF patients.

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NF Awareness Month Celebrated Community & Hope

Recap of NF Awareness Month events, stories, and milestones from across the country.

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Partners & Friends

SpringWorks TherapeuticsAlexion (AstraZeneca Rare Disease)NORDCandid / GuideStar

Join the Fight Against NF

Your support helps fund critical research, build community programs, and advocate for better treatments. Every contribution makes a difference.