Community

You are not alone. Connect with local NF groups, find support in our online community, and discover life-changing NF camp experiences for the whole family.

Member Organizations

50+ Local NF Groups Nationwide

The NF Network unites over 50 member organizations across the country, each serving their local community with support groups, educational events, and advocacy. Find a group near you and connect with people who truly understand.

Local Chapters & Affiliates

Grassroots organizations in communities across the United States offering in-person support groups, educational events, awareness walks, and local advocacy efforts.

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Regional NF Networks

Multi-state coalitions that coordinate regional conferences, connect families across broader areas, and amplify local voices in state-level advocacy.

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Clinic-Based Support Groups

NF specialty clinics across the country host regular support group meetings, bringing together patients, caregivers, and medical teams in a supportive environment.

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Virtual Communities

Online groups and forums that connect NF families regardless of geography — ensuring that even those in rural areas or far from a major clinic can find support.

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Online Support

NF Network Inspire Community

Connect with thousands of NF patients, families, and caregivers from anywhere in the world through our online support community, powered by Inspire.

The NF Network Inspire Community is a free, moderated online space where you can ask questions, share experiences, and find emotional support — all from the comfort of your home. Whether you're newly diagnosed, navigating treatment decisions, or caring for a loved one, you'll find a welcoming community ready to help.

Always Available

Access the community 24/7 from any device — support is there whenever you need it.

Topic-Based Discussions

Find conversations organized by topic, from NF1 and NF2 to parenting, school, and treatment.

Moderated & Safe

A respectful, supportive space moderated to ensure a positive experience for all members.

Thousands of Members

Join a vibrant community of NF patients, parents, spouses, and advocates sharing their journeys.

NF Camps

Life-Changing Camp Experiences

Our NF camp programs give children, teens, and families the chance to unplug, connect with nature, and build relationships with others who share the NF journey — all in a safe, medically supported environment.

NF Summer Camp

A week-long residential summer camp for children and teens with NF, offering traditional camp activities in a safe, medically supported environment where campers build confidence, independence, and lifelong friendships.

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Family Camp Weekends

Weekend retreats designed for the whole family. Parents connect with other NF families, siblings find understanding peers, and everyone enjoys outdoor activities tailored to all abilities.

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Teen & Young Adult Retreats

Leadership and social programs for teens and young adults living with NF, focusing on self-advocacy, career readiness, and building a peer network for the transition into adulthood.

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Why NF Camps Matter

100%
Medical Support

Every camp session is staffed by medical professionals who understand NF, so parents can feel confident their child is in safe hands.

No Cost
To Families

Thanks to generous donors, NF camps are provided at no charge to families — removing financial barriers to participation.

Lifetime
Friendships

Campers meet others who truly get what they're going through, forming bonds that last well beyond the summer.

All Ages
& Abilities

Programs are designed to be inclusive and accessible, with activities adapted so every camper can participate fully.

Strengthen the NF Community

Your support helps fund local groups, online communities, and NF camp programs that connect families and change lives. Together, we ensure no one faces NF alone.